Jesy Nelson shares heartfelt tribute to her ‘fighter’ twins on first birthday
Jesy Nelson celebrates twins first birthday and champions SMA screenings
- Jesy Nelson celebrated the first birthday of her twin daughters, Ocean Jade and Story Monroe Nelson, expressing immense pride in their strength and resilience.
- Her twins were diagnosed with SMA1 (spinal muscular atrophy), a genetic condition causing progressive muscle wastage, which means they are unlikely to walk or regain neck strength.
- Nelson marked the occasion by sharing a heartfelt video featuring the poem 'Welcome To Holland' and a caption describing her daughters as 'the strongest most resilient little fighters I’ve ever known'.
- The singer has become a vocal advocate for adding SMA to the newborn blood spot screening test, emphasising that early detection and treatment can significantly mitigate the condition's severe effects.
- Her campaigning efforts include meeting with Wes Streeting and visiting 10 Downing Street to discuss early detection, as well as becoming a patron of the charity SMA UK.
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